Times Like These

John's laying on the floor using his chest percussor. He's already done his right side and coughed up a whole lot of BLECH. Now he's working on his left side.  He has a chest therapy vest to use too, it just doesn't do the same job. For the most part, day to day, his CF just blends into our lives. Digestive Enzymes here, breathing treatment there. When he gets sick, it sticks out like a sore thumb. A sinus infection to him is like the flu to anyone else. A simple sinus infection. It's times like these I snap back to the reality of our life and living with Cystic Fibrosis. As he nears the median age of survival with CF, I can't help but wonder what our future holds. That's 37 by the way. He's 32. I know it stresses him out worrying about what will happen to his family when something happens to him. It's harder for him to put out of his mind since he is the one living with it every day. Each time he has a coughing spell or his asthma is bothering him. Each time he takes a pill or breathing treatment. How could it not be on your mind?

Shelby and John on Father's Day.

John using his chest percussor

We love him very much.  We've been more lucky than most.  I hope we continue to be lucky.

Just Us

I can thankfully say that I have nothing to report. As you have previously read, I think we are caught up on stuff happening for a little while. Ian has his Blue & Gold Banquet tonight for Scouts. He will be crossing over to a Boy Scout. He is supposed to have baseball try-outs tomorrow, but if we get this snow I don't see that taking place. John is off this weekend so we will get to spend some time together as a family. His work schedule doesn't give him many weekends off so we enjoy the ones we get.


I will post pictures from the banquet (eventually). I haven't had Internet access at home since the ice storm. Well, I had it for a few days and then no more. So I can't publish pictures with my stories until we get it back. So some of these post will be edited and pictures added.

We were supposed to be attending the annual Cystic Fibrosis Celebrity Dinner tonight. Ian's Blue/Gold Banquet is on the same night year to year so we try and alternate. This was supposed to be our CF year. However, due to lack of funds to purchase the tickets since my job loss in January, we are not going to be able to go. There is always next year! The next big fundraiser for our area is the Great Strides Walk in May. Once I figure out this blogger thing, I will publish the link to our team and all who want can sign up to be on our team and raise money. It will be held at Waterfront Park. Perfect for walking with a stroller and little ones! It is awesome because it is not a race. You walk completely at your own pace and the money raised benefits the Cystic Fibrosis Foundation. Knock on wood... John has made it through this part of winter without any major illness or complications from his CF. He was down and out back in November, but that was it. So stay tuned and I'll update some of these bare post and add the links as promised!