Moving Day

I've made the switch to Wordpress.  I am in love.  So head on over and visit us.  I've imported all my post from Blogger.  Our new site is called ThirtyplusThree.  The web address is www.ourcfcarousel.com.  I'm looking forward to working on the site.  Please be patient as I try to customize and stylize our new home.

Ch-Ch-Changes...

Making the move to a new (to me) blogging platform!  Time to graduate from Blogger to the real deal.  Hopefully, with Madison's cooperation, I'll be able to get this done tonight.  Can't wait!

Times Like These

John's laying on the floor using his chest percussor. He's already done his right side and coughed up a whole lot of BLECH. Now he's working on his left side.  He has a chest therapy vest to use too, it just doesn't do the same job. For the most part, day to day, his CF just blends into our lives. Digestive Enzymes here, breathing treatment there. When he gets sick, it sticks out like a sore thumb. A sinus infection to him is like the flu to anyone else. A simple sinus infection. It's times like these I snap back to the reality of our life and living with Cystic Fibrosis. As he nears the median age of survival with CF, I can't help but wonder what our future holds. That's 37 by the way. He's 32. I know it stresses him out worrying about what will happen to his family when something happens to him. It's harder for him to put out of his mind since he is the one living with it every day. Each time he has a coughing spell or his asthma is bothering him. Each time he takes a pill or breathing treatment. How could it not be on your mind?

Shelby and John on Father's Day.

John using his chest percussor

We love him very much.  We've been more lucky than most.  I hope we continue to be lucky.

Generations

 

My girls.  Cindy Lou Who will always have someone to turn to.  Someone to look up to.  She will have her big sister.  Being an only child, I appreciate what my girls will have as they grow older.  There is a bond between sisters that is unexplainable.  Almost like that of twins.  Thing 1 has the best of both worlds.  She has a brother who is by her side, going through this awkward stage in life as “tweens”.  She has a sister, who in time, will be her best friend.  I had never given thought to children before I had them.  I didn’t know that I wanted them, how many, or when.  Starting a family was not in my big picture.  Now it’s my only picture. 

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